Hello, we had a good day today. It looked as though it might be not so great as he was back in bed before 9:45am when I arrived, and looked "tuckered out". But later he worked with occupational therapy, speech therapy, and physical therapy came back 2 different times as he was sleeping so soundly between workouts! When he did work with Tom, PT, that included Tom helping him stand to transfer (with LOTS of help from Tom) to the wheelchair. But then Tom helped him stand up 3 times from the chair! His right leg totally buckles, but just being able to stand at all is huge, and not anything that he could do last week, so the forward momentum is really moving along. Also, Marion then went for a ride out into the hall, and where last week he only pushed himself about 6-8 inches, this time he pushed himself a significant way down and back up the hall.
Tomorrow has the potential for being a wonderful day. He starts, perhaps, with having his trach tube downsized from a size 8 to a size 6. Then PT is going to work him, so when he goes to Radiology for a barium swallow test at 11am it will be accurate, not a false reading, and if he passes this one, he really will be ready to eat real food. An accomplishment that will mean so much to Marion, even if it is all ground up to begin with, much better than through a tube down your nose! So lots of prayers tonight please. I'll fill you all in tomorrow. Love, Sue
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